Bone cancer and lung secondaries and June
just kept on living her life day by day and was still alive more than 40 years later
What can we learn
from people who, medically speaking, should have died but didn’t? June is one of these. She was not expected to
survive the cancer in her hip at 21, and certainly wasn’t expected to survive for decades after her first lung
metastases occurred. She had less than one chance in 1000 of surviving with an excellent quality of life.
So how could that happen?
Doctors are very
happy when one of their patients does much better than expected. But they tend not to explore the issue of one
amazing case, as their time is taken up on those cases which “really” need their care and attention. Others will
suggest that an unexpected recovery was due to a “late effect of treatment” or perhaps to spontaneous
regression of the tumour.
However the really
important thing to know is whether survivors like June have anything in common or whether there they are so
different that we cannot say anything useful.
The first thing to
acknowledge is that they are very different as people. Both males and females survive unexpectedly. Some come
from high social status work, some are manual workers, some are trades people, teachers, performers, and
probably every type of employment. Some come with a lot of education, some with very
little.
June had just
qualified as a music teacher when she first went down with cancer and later became a single parent in the late
1950s in a conservative community. Her family assisted with childcare as she went back to work to support her
son.
The second thing to
acknowledge is that despite being very different personalities and with very different backgrounds survivors are
people with a lot in common. A major study published in March 2008 in the Qualitative Health Research journal
explored Personal Resilience, that quality which all of the survivors had.
Personal
resilience had five major dimensions which all participants had to develop and continue during the time
they were ill and afterwards. Each of these dimensions were further subdivided into more than 50 components all
of which were necessary – none were optional.
These types of
findings are a nightmare to medical researchers. Researchers only want to have a couple of variables. Then they
want to be able to measure these with a scientific test, or simple questionnaire to thousands of people in order
to prove or disprove whether one of the variables can be shown to be important to recovery. Having some 50
variables or components makes it impossible to prove a theory one way or the other.
But isn’t that part
of what makes up human? We are all incredibly complex beings. Why should we ever expect healing to be able to be
reduced down to one or two or three components?
June lived a very
different life to others in the study. The 50 odd components of resiliency did not mean she was a clone of any
of the others in the group.
June was a lovely
older woman, with a strong religious faith that was very important to her. On one occasion she had a miracle
disappearance of a tumor and there was a full medical inquiry after the “unnecessary surgery” found no evidence
that there ever had been a tumor there at all.
June had known they
would find nothing when they operated but as she had no proof she felt that she couldn’t tell the surgeon and
oncologist that God had healed her overnight. That type of conversation was not the sort that she felt that she
could have with her medical carers at the time. However she was able to discuss it with the surgeon the next
time the secondaries returned.
Most in the study had
less dramatic remissions of their condition. But for each person personal resilience was about living life to
the fullest day by day according to their values.
The wonderful thing
about personal resilience is that we don’t need to prove it to scientific standards because resilience is all
about living the life that the person really wants to live. It is not a treatment that has to be proved by
randomized controlled trials. It is about each person being true to themselves, fully connected to life in its
various components and living moment by moment for every day they have left. Moment by moment, day by day, and
for each of these the weeks stretched into months and years, and for June, into
decades.
To find out all
the details about about what survivors such as June had in common you need to
read "Beat The Medical Odds." A review of Beat The Medical Odds can be read here.
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